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About Us

Important Update:
We are no longer a registered 501(c)(3) non-profit organization. This website is only occasionally updated, but will be kept online as long as it serves the needs of the community. The discussion forums are still active. Updates can also be found at Please contact for any inquiries.

In 1992, eight families in the Chicago-land area joined forces to create a support network of parents of children born with EA/TEF. Their shared experiences were made easier with the support of others facing similar situations and asking similar questions. The network of information and support which they created was the seed for the EA/TEF Family Support Connection. Our original intention was to just form a local support group for Chicago-land area families. However, we have become a national clearinghouse for information on these birth defects.

(Former) Misson Statement
The EA/TEF Family Support Connection was formed by and for families of children born with (Esophageal Atresia and Tracheoesophageal Fistula) EA/TEF and the medical professionals who treat them. We are an organization dedicated to providing educational resources as well as emotional and practical support to aid in the daily care of our medically fragile children.