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Abigail's Smile

Ami Hays wrote this children's book about EA/TEF for all of you to have a book in your home that your child can understand about EA/TEF. The illustrations and short story open up the conversation and allow your child, there siblings, and friends to see who a EA/TEF child is. It can be purchased below and funds raised go to EA/TEF!

An EA/TEF Story Inside And Out
Every year when school starts, parents get anxious about how to "explain" their EA/TEF child to their community at school.

Vanessa Munsch created "An EA/TEF Story Inside And Out" to ease that conversation. The story is framed within a "Sharing Time," which is a moment when children get to share something about themselves in front of their class.

Some words of encouragement from a community member

Someone would like to share some anonymous words of encouragement. Thanks, anonymous! If you'd like to share something, you can email me at, or send a private facebook message to EA/TEF Family Support Connection.

"My spouse, born in the early 1980s, was born with a TEF. He was born as a third trimester preemie. By luck alone he had a NICU nurse attend his delivery, and she noticed excess amniotic fluid and some other signs of TEF. She told my mother in law not to nurse him, and went off to grab a doctor.

Please help keep going!

Our website domain name is up for renewal again. Thanks to your generosity last time, this year's bill is almost paid. If you'd like to ensure that our website continues its global reach, this is the perfect opportunity to make a donation directly to the web hosting provider, which accepts donations on behalf of the organization. It is $120 per year, so getting just 12 donations of $10 each will cover a full year. Thanks to everyone who contributed last time, and thanks in advance for helping to keep this going for the future!

The recurrence risk for siblings is 1%

I'm frequently asked if I know how likely it is to have another child with EA/TEF. The official answer, according to

"The overall risk of oesophageal atresia recurrence in a sibling of an affected child is about 1%."

This refers to having another child from a different pregnancy. In a twin, esophageal atresia is 2 to 3 times more common.

New Esophageal Center at Cincinnati Children's Hospital Medical Center

Esophageal Center features the multidisciplinary expertise to treat children with even the most complex esophageal disorders, such as esophageal atresia (EA) and tracheosophageal fistulas (TEF).

Bianchi Thoracotomy

Dr. Edwin Jesudason writes:

"In Liverpool, we have been using a technique first described more than 10 years ago in Manchester, UK by Adrian Bianchi - to make use of an incision that is hidden in the armpit. This is called the axillary approach and is very cosmetic. I should be grateful to know if you or your members are familiar with this approach and what level of awareness there amongst surgeons about using this technique to successfully hide the thoracotomy scar high in the armpit."

Joe G's story

Joe G. writes in from Denver, Colorado:

Joe: I was born with Esophageal Atresia in 1958, Denver Colorado. I beileve my esophagus was only an inch or two at the most. They waited until I was 2 years of age and then went in through my back and used the intestine to make the rest of the esophagus. I still have all the articles that the Rocky Mountain News ran on me during that time. I know how hard it was for my folks. I always felt if I could be any help to a young faimily that could see a person who is now 53 healthy/ married/ kids etc I would be more than happy to.

Reglan FDA warning

Many EA/TEF patients are diagnosed with GERD (gastroesophageal reflux disease), and Reglan is a common drug prescribed. The following is a US FDA warning about Reglan, which may affect some people. Please talk to your doctor about any questions you may have.


Reglan and Nervous System Disorder
On Feb. 26, 2009, FDA warned against the long-term use of drugs that contain Reglan (metoclopramide).

Congratulations to Rowan in Paris!

Congratulations to Rowan in Paris for your shiny new baby!


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