EA/TEF Family Support Connection

Error message

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_environment_initialize() (line 695 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_environment_initialize() (line 696 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_environment_initialize() (line 697 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_environment_initialize() (line 700 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_environment_initialize() (line 702 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in include_once() (line 353 of /home/mapar70/assets/drupal/default/settings.php).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in include_once() (line 354 of /home/mapar70/assets/drupal/default/settings.php).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in include_once() (line 362 of /home/mapar70/assets/drupal/default/settings.php).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in include_once() (line 369 of /home/mapar70/assets/drupal/default/settings.php).

Warning: ini_set(): Session ini settings cannot be changed after headers have already been sent in drupal_settings_initialize() (line 819 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: session_name(): Session name cannot be changed after headers have already been sent in drupal_settings_initialize() (line 831 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Deprecated function: Return type of DatabaseStatementBase::execute($args = [], $options = []) should either be compatible with PDOStatement::execute(?array $params = null): bool, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2244 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Deprecated function: Return type of DatabaseStatementEmpty::current() should either be compatible with Iterator::current(): mixed, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2346 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Deprecated function: Return type of DatabaseStatementEmpty::next() should either be compatible with Iterator::next(): void, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2346 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Deprecated function: Return type of DatabaseStatementEmpty::key() should either be compatible with Iterator::key(): mixed, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2346 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Deprecated function: Return type of DatabaseStatementEmpty::valid() should either be compatible with Iterator::valid(): bool, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2346 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Deprecated function: Return type of DatabaseStatementEmpty::rewind() should either be compatible with Iterator::rewind(): void, or the #[\ReturnTypeWillChange] attribute should be used to temporarily suppress the notice in require_once() (line 2346 of /home/mapar70/drupal-7.82/includes/database/database.inc).

Warning: session_set_save_handler(): Session save handler cannot be changed after headers have already been sent in drupal_session_initialize() (line 242 of /home/mapar70/drupal-7.82/includes/session.inc).

Deprecated function: strlen(): Passing null to parameter #1 ($string) of type string is deprecated in drupal_random_bytes() (line 2268 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Warning: session_id(): Session ID cannot be changed after headers have already been sent in drupal_session_initialize() (line 266 of /home/mapar70/drupal-7.82/includes/session.inc).

Warning: Cannot modify header information - headers already sent by (output started at /home/mapar70/drupal-7.82/includes/bootstrap.inc:320) in drupal_send_headers() (line 1505 of /home/mapar70/drupal-7.82/includes/bootstrap.inc).

Deprecated function: strpos(): Passing null to parameter #1 ($haystack) of type string is deprecated in url_is_external() (line 2393 of /home/mapar70/drupal-7.82/includes/common.inc).

Deprecated function: str_replace(): Passing null to parameter #3 ($subject) of type array|string is deprecated in url_is_external() (line 2395 of /home/mapar70/drupal-7.82/includes/common.inc).

Deprecated function: ltrim(): Passing null to parameter #1 ($string) of type string is deprecated in url() (line 2311 of /home/mapar70/drupal-7.82/includes/common.inc).

Some words of encouragement from a community member

Mon, 11/25/2013 - 10:12 — matt

Someone would like to share some anonymous words of encouragement. Thanks, anonymous! If you'd like to share something, you can email me at matt@eatef.org, or send a private facebook message to EA/TEF Family Support Connection.

"My spouse, born in the early 1980s, was born with a TEF. He was born as a third trimester preemie. By luck alone he had a NICU nurse attend his delivery, and she noticed excess amniotic fluid and some other signs of TEF. She told my mother in law not to nurse him, and went off to grab a doctor.

Read more about Some words of encouragement from a community member
matt's blog
Log in to post comments

Please help keep eatef.org going!

Sat, 11/09/2013 - 12:39 — matt

Our website domain name is up for renewal again. Thanks to your generosity last time, this year's bill is almost paid. If you'd like to ensure that our website continues its global reach, this is the perfect opportunity to make a donation directly to the web hosting provider, which accepts donations on behalf of the organization. It is $120 per year, so getting just 12 donations of $10 each will cover a full year. Thanks to everyone who contributed last time, and thanks in advance for helping to keep this going for the future!

Read more about Please help keep eatef.org going!
matt's blog
Log in to post comments

The recurrence risk for siblings is 1%

Wed, 10/23/2013 - 14:42 — matt

I'm frequently asked if I know how likely it is to have another child with EA/TEF. The official answer, according to http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1884133/

"The overall risk of oesophageal atresia recurrence in a sibling of an affected child is about 1%."

This refers to having another child from a different pregnancy. In a twin, esophageal atresia is 2 to 3 times more common.

Read more about The recurrence risk for siblings is 1%
matt's blog
Log in to post comments

New Esophageal Center at Cincinnati Children's Hospital Medical Center

Mon, 11/28/2011 - 09:10 — matt

Esophageal Center features the multidisciplinary expertise to treat children with even the most complex esophageal disorders, such as esophageal atresia (EA) and tracheosophageal fistulas (TEF).

http://www.cincinnatichildrens.org/esophageal-center

http://www.youtube.com/watch?v=wfVMYGF0XBw

Read more about New Esophageal Center at Cincinnati Children's Hospital Medical Center
matt's blog
Log in to post comments

Bianchi Thoracotomy

Mon, 11/28/2011 - 08:30 — matt

Dr. Edwin Jesudason writes:

"In Liverpool, we have been using a technique first described more than 10 years ago in Manchester, UK by Adrian Bianchi - to make use of an incision that is hidden in the armpit. This is called the axillary approach and is very cosmetic. I should be grateful to know if you or your members are familiar with this approach and what level of awareness there amongst surgeons about using this technique to successfully hide the thoracotomy scar high in the armpit."

Joe G's story

Fri, 11/11/2011 - 00:30 — matt

Joe G. writes in from Denver, Colorado:

Joe: I was born with Esophageal Atresia in 1958, Denver Colorado. I beileve my esophagus was only an inch or two at the most. They waited until I was 2 years of age and then went in through my back and used the intestine to make the rest of the esophagus. I still have all the articles that the Rocky Mountain News ran on me during that time. I know how hard it was for my folks. I always felt if I could be any help to a young faimily that could see a person who is now 53 healthy/ married/ kids etc I would be more than happy to.

Reglan FDA warning

Wed, 08/31/2011 - 11:13 — matt

Many EA/TEF patients are diagnosed with GERD (gastroesophageal reflux disease), and Reglan is a common drug prescribed. The following is a US FDA warning about Reglan, which may affect some people. Please talk to your doctor about any questions you may have.

From http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm142815.htm#Reglan

Reglan and Nervous System Disorder
On Feb. 26, 2009, FDA warned against the long-term use of drugs that contain Reglan (metoclopramide).

Congratulations to Rowan in Paris!

Thu, 06/16/2011 - 09:41 — matt

Congratulations to Rowan in Paris for your shiny new baby!

Read more about Congratulations to Rowan in Paris!
matt's blog
Log in to post comments

First International Workshop on Esophageal Atresia

Sun, 08/30/2009 - 21:42 — matt

The First International Workshop on Esophageal Atresia will take place in France in the Spring of 2010. Doctors will gather to discuss topics such as genetics, surgical procedures, reflux, complications, and quality of life issues.

http://www.esophageal-atresia2010.com/

Read more about First International Workshop on Esophageal Atresia
matt's blog
Log in to post comments

A Pioneer EA/TEF Baby

Sun, 07/19/2009 - 21:10 — matt

by Claudia Z., Spring 1999

In 1953 Claudia was one of the earliest survivors of EA/TEF. In 1988, she was repaired for a second time at the age of 35. Ten years later she made her first connections to the EA/TEF community. Now Claudia, and her surgeon Dr. Juda Jona, share her story with us.

Read more about A Pioneer EA/TEF Baby
Log in to post comments

Navigation