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Joe G's story

Joe G. writes in from Denver, Colorado:

Joe: I was born with Esophageal Atresia in 1958, Denver Colorado. I beileve my esophagus was only an inch or two at the most. They waited until I was 2 years of age and then went in through my back and used the intestine to make the rest of the esophagus. I still have all the articles that the Rocky Mountain News ran on me during that time. I know how hard it was for my folks. I always felt if I could be any help to a young faimily that could see a person who is now 53 healthy/ married/ kids etc I would be more than happy to.

Reglan FDA warning

Many EA/TEF patients are diagnosed with GERD (gastroesophageal reflux disease), and Reglan is a common drug prescribed. The following is a US FDA warning about Reglan, which may affect some people. Please talk to your doctor about any questions you may have.

From http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm142815.htm#Reglan

Reglan and Nervous System Disorder
On Feb. 26, 2009, FDA warned against the long-term use of drugs that contain Reglan (metoclopramide).

Congratulations to Rowan in Paris!

Congratulations to Rowan in Paris for your shiny new baby!

First International Workshop on Esophageal Atresia

The First International Workshop on Esophageal Atresia will take place in France in the Spring of 2010. Doctors will gather to discuss topics such as genetics, surgical procedures, reflux, complications, and quality of life issues.

http://www.esophageal-atresia2010.com/

Now on Facebook

I've finally gotten around to creating a Facebook page for us:

http://www.facebook.com/pages/EATEF-Family-Support-Connection/78418175958

Enjoy!

Seeking volunteers for a phone study

We would like to have some parent input regarding what medical information they would like to have regarding EA/TEF and ongoing care and issues. Time commitment would be 1-2 phone conferences a month for possibly a few months.

Please private message me or email me if interested. We're looking to have the first phone conference at the end of May.

Thanks,

Matt

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